Spina Bifida of Greater St. Louis
A community for every person and family living with Spina Bifida in Greater St. Louis.
Connection. Support. Belonging.
Welcome to the Spina Bifida Association of Greater St. Louis — a place where every family, every story, and every journey matters. Whether you’re celebrating a milestone, navigating a new diagnosis, or simply looking for people who understand your world, you’re not alone. This community is full of parents, kids, teens, and adults who show up for one another with encouragement, laughter, practical support, and real connection.
We’re here to walk with you — through the big moments, the hard days, and everything in between. Come join us at an event, connect with other families, or reach out for support. You belong here, and we’re glad you found us.
Our Mission: We will provide service, support, and opportunities to develop the maximum potential of all individuals born with Spina Bifida and neural tube defects and their families; and to assure development of the best possible quality of life.
Next Events:
Birth to Five Meetup: November 7th, 1-4 PM @ Grandma’s Playroom
Young Adult Meetup: December 5th, 12-5 PM, @ Dave & Buster’s
Thank you to our awesome teams that helped fundraise this year and to Ranken Jordan for sponsoring the event. Looking forward to next year!
Help us keep our contacts up to date! If you haven’t submitted your child’s age for the 2026 year or yourself as an adult with Spina Bifida, please use this link to keep your contact updated. We will use this information to contact you about age appropriate events this year.
SBSTL offers events throughout the year for individuals and their families for all ages and financial assistance in various forms for those living in our service area of Southern Illinois and Eastern Missouri.
Financial Assistance
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Funds that can be used for medical assistance, therapy, equipment, and more
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Scholarship grants for post-secondary education, at 2-year or 4-year colleges or certified vocational schools.
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For those in our service area and have been hospitalized at least 1 night.
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Scholarships for activities or camps.
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New Parent Support
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Support Groups
